SOLIRIS (eculizumab): The first treatment specifically approved for PNH

SOLIRIS Resources: Links to PNH Resources

Links to additional resources

Links to PNH resources

AAMDS.org
Aplastic Anemia and MDS International Foundation, Inc.
A source for bone marrow disease information, including PNH.

NFCAcares.org
National Family Caregivers Association offers extensive resources, tips, guides and links.

www.raredisease.org — National Organization for Rare Diseases (NORD)
NORD is dedicated to helping improve the lives of people with rare diseases through advocacy and by serving as a clearinghouse for news, information about research and grants, and patient services and resources. The NORD website provides valuable information in all of these areas.

PNHdisease.org
The PNH patient support group website.

PNHfoundation.org
An organization dedicated to raising funds for PNH research and helping families with disease-related expenses not covered by insurance.

PNHsource.com
PNH disease website dedicated to providing information about PNH.

Wellspouse.org
Support and connections for the care giving partner.


IMPORTANT SAFETY INFORMATION

WARNING: SERIOUS MENINGOCOCCAL INFECTION

SOLIRIS® increases the risk of meningococcal infections.

Patients should be vaccinated with a meningococcal vaccine at least 2 weeks prior to receiving the first dose of SOLIRIS. Revaccinate according to current medical guidelines for vaccine use.

Patients should be monitored closely for early signs of meningococcal infections and evaluated immediately if infection is suspected, and treated with antibiotics if necessary.

The effect of withdrawal of anticoagulant therapy during SOLIRIS treatment has not been established. Therefore, treatment with SOLIRIS should not alter anticoagulant management.

SEE FULL PRESCRIBING INFORMATION FOR COMPLETE BOXED WARNING INCLUDING WARNINGS, PRECAUTIONS, AND ADVERSE REACTIONS.

The most frequent adverse events observed in clinical studies were headache, nasopharyngitis, back pain, nausea, fatigue, and cough.

Please see important safety information (including boxed warning) as well as the complete prescribing information.