Links to additional resources
AAMDS.org
Aplastic Anemia and MDS International Foundation, Inc.
A source for bone marrow disease information, including PNH.
NFCAcares.org
National Family Caregivers Association offers extensive resources, tips, guides and links.
www.raredisease.org — National Organization for Rare Diseases (NORD)
NORD is dedicated to helping improve the lives of people with rare diseases through advocacy and by serving as a clearinghouse for news, information about research and grants, and patient services and resources. The NORD website provides valuable information in all of these areas.
PNHdisease.org
The PNH patient support group website.
PNHfoundation.org
An organization dedicated to raising funds for PNH research and helping families with disease-related expenses not covered by insurance.
PNHsource.com
PNH disease website dedicated to providing information about PNH.
Wellspouse.org
Support and connections for the care giving partner.