2010 Patient Calendar of Events
PNH Patient Support Group Meetings
Sponsored by the National Organization for Rare Disorders
Throughout the year, the National Organization for Rare Disorders (NORD) hosts regional
meetings around the country for PNH patients and their families. At these events,
patients come together in small groups to learn more about their disease from a
medical expert specializing in PNH, and provide support to one another. There is
no cost to attend. Meals and hotel accommodations are included.
For more information and to RSVP, please call Susan Olivo at NORD, 203-744-0100.
Baltimore
When: March 11-12, 2010
Portland, OR
When: April 9-10, 2010
Cincinnati
When: April 23-24, 2010
Boston
When: May 7-8, 2010
Denver
When: June 4-5, 2010
Chicago
When: June 25-26, 2010
Los Angeles
When: July 23-24, 2010
Nashville
When: August 13-14, 2010
Ann Arbor
When: September 10-11, 2010
New York City
When: September 24-25, 2010
Atlanta
When: October 8-9, 2010
Phoenix
When: November 5-6, 2010
Annual Patient & Family Conference
Sponsored by the AA&MDS International Foundation
Each year, AA&MDSIF holds a Patient & Family Conference bringing together patients
and their families with some of the world's most distinguished medical experts in
bone marrow disorders, including PNH. In addition to medical presentations, attendees
have the opportunity to meet other patients and families in specially designed workshops
as a way to connect with and support others affected by PNH.
Save the date. More information will follow.
Washington, DC
When: July 10-13, 2010