Q&A
Have a question? Need answers? Start here.
Paroxysmal nocturnal hemoglobinuria (PNH) is a complex disease with signs and symptoms
that are nonspecific, unpredictable, and often similar to those of other diseases.
Here you will find answers to some more frequently asked questions to help give
you a better understanding of PNH and Soliris®. As you read through
them, remember that your own questions may differ from those asked because your
experiences with PNH may be different from others.1 Remember, too, that
you should always discuss these and any other medical questions with your doctor.
OneSource™ Program
A:
OneSource is a program that provides education, assistance with access, and treatment support for
all people living with PNH and their caregivers. Whether you are learning more about
your disease, exploring treatment options, getting ready to begin Soliris therapy,
or are already on Soliris, OneSource is here to help.
OneSource is staffed by Alexion Nurse Case Managers who are registered nurses with
healthcare and insurance expertise. They are available every step of the way to
answer questions about PNH and Soliris and provide personalized support for you
and your healthcare team.
For example, Alexion Nurse Case Managers offer one-to-one PNH education and help
navigating through insurance issues. They are available to answer any questions
you may have, including those about insurance coverage, lifetime maximums, and getting
access to treatment with limited or no insurance coverage. No matter what your personal
situation is, OneSource is here to help make treatment access as easy as possible
for you.
If you and your doctor decide that Soliris therapy is right for you, your Alexion
Nurse Case Manager will help you get started.
Q:
Why was OneSource created?
A:
OneSource was created by Alexion Pharmaceuticals as part of the company’s commitment
to the PNH community. The goal is to provide information on the disease and Soliris
therapy. Alexion Nurse Case Managers can help with insurance verification and address
other insurance-related or funding issues, such as out-of-pocket expenses, annual
caps, and lifetime maximums.
We know that living with a rare disease like PNH can be very challenging. That’s
why OneSource was created for you and your healthcare team—to answer any questions
you may have about PNH and Soliris.
Q:
Who do I speak with at OneSource?
A:
When you call OneSource, you will speak with a registered nurse with healthcare
and insurance expertise, also known as an Alexion Nurse Case Manager. Whatever your
situation, Nurse Case Managers are available to answer your questions about PNH
and Soliris and provide personalized support every step of the way.
Q:
Why should I call OneSource?
A:
We know that living with a rare disease like PNH can be very challenging. That’s
why OneSource was created for you and your healthcare team—to answer questions about
PNH, provide one-to-one treatment support, and explore funding options. What’s more,
the services offered by OneSource are provided as a resource to you and your healthcare
team without cost or obligation. Offered services include:
- Education: Alexion Nurse Case Managers work together with you and your healthcare
team, answering questions and providing educational resources related to PNH and
Soliris. In addition, they can help you understand more about your first infusion
so you’ll know exactly what to expect
- Access to Soliris treatment: We understand that the insurance process can
be time-consuming and confusing. Your Alexion Nurse Case Manager can help navigate
insurance issues and coordinate other needs that are important to your treatment
plan. He or she can also help by providing information on insurance verifications,
coverage determinations, and, if necessary, assistance in securing alternative funding
- Treatment support: If you and your doctor decide that Soliris is right for
you, your Alexion Nurse Case Manager is available to answer any questions you may
have about treatment with Soliris. Your Nurse Case Manager can help you understand
what to expect during your first infusion and why it’s important to stay on your
infusion schedule—including when you’re traveling. He or she can also help find
solutions for maintaining therapy when a major life event occurs, such as a change
in the status of your family, job, doctor, or insurance plan
Q:
Do I have to pay to use OneSource?
A:
No. OneSource is open to all people living with PNH and their caregivers at absolutely
no cost or obligation.
Q:
My insurance has changed. How can OneSource help?
A:
Your Alexion Nurse Case Manager can provide information that you may find helpful
if your insurance coverage changes, if you switch plans, or if you add or remove
family members. Remember, it’s important to stay on your infusion schedule to get
the full benefit of your Soliris therapy. Contact OneSource before your insurance
coverage changes.
Even if you’re just considering therapy options for your PNH, your Alexion Nurse
Case Manager can help answer questions about health insurance and explain your options.
Q:
I’m not currently on Soliris. Can I still call OneSource?
A:
Yes. OneSource is open to all people living with PNH and their caregivers. Whether
you’ve been recently diagnosed with PNH or have been living with it for a while,
an Alexion Nurse Case Manager will work one-to-one with you to provide personalized
support. He or she is available to answer any questions you may have about PNH and
Soliris and can address insurance-related and funding issues as well.
Remember, only you and your doctor can decide whether Soliris therapy is right for
you.
Q:
I am considering Soliris therapy. What are my next steps?
A:
Simply call 1.888.SOLIRIS (1.888.765.4747) to speak with an Alexion Nurse Case Manager.
He or she will explain the OneSource services to you and answer any questions you
may have about starting treatment with Soliris.
You will receive forms to fill out, which will allow your Alexion Nurse Case Manager
to speak with your healthcare team and insurance provider and provide access to
treatment if you and your doctor choose Soliris. For more information about getting
forms and starting Soliris therapy, call 1.888.SOLIRIS.
Q:
What can I do if my insurance plan has a lifetime maximum or if I don’t have any
health insurance?
A:
Contact your Alexion Nurse Case Manager, who can assist you by researching alternative
funding options. In some cases, other forms of assistance may also be available
for those with limited or no insurance coverage.
Q:
Can OneSource help me stay on my Soliris infusion schedule while I’m traveling?
A:
In many cases, your Alexion Nurse Case Manager can help you find alternate
infusion sites and, if your insurance allows, coordinate your care for those times
when you are away from home. While you’re away, it’s important to stay on your infusion
schedule to get the full benefit of your Soliris therapy. Contact your Nurse Case
Manager as soon as you know your travel schedule—at least two weeks before you leave.
Q:
I’m unclear about my insurance options. Can OneSource help?
A:
Yes. Alexion Nurse Case Managers can help you evaluate your options based on your
personal situation and current therapies. A good time to review your insurance options
is during your insurance plan’s open enrollment period, which is usually sometime
in the fall. OneSource is also available anytime during the year to help you work
through insurance issues or answer any questions you might have.