PNH Community Stories
Real stories from real people about the disease — and Soliris® treatment
If you or a loved one is affected by paroxysmal nocturnal hemoglobinuria (PNH), you're not alone. While these stories — like PNH — are unique to each individual, confronting PNH with strength and courage is something everyone touched by the disease shares.
As you read the following stories,
remember that your own experiences may differ from those described because the signs and symptoms of PNH are highly
unpredictable and vary from patient to patient.1
Chronic hemolysis (the destruction of red blood cells) is the underlying cause of the signs and symptoms associated with PNH in all patients.
Keep in mind that even if you can’t feel it, hemolysis is constant and potentially life threatening.2
Serious health complications, such as blood clots, kidney failure, and damage to vital organs, can result if PNH is not treated early.1
Featured Video
Jules
Jules, a former Marine and retired police officer, was looking forward to enjoying his retirement when he was diagnosed with PNH.
Featured Story
Greg
Greg, an avid golfer and the picture of health, almost had to give up his love for exercising when he learned he had PNH.
Community Videos
Maria
Maria was a young mother with two small children when she found out she had PNH.
Community Stories
Drew
Twenty-year-old Drew is living his dream — he’s pitching college baseball. But his dream almost became a nightmare when he learned he had PNH.
Margarita
Only 17 years old, Margarita was devastated when she learned she had PNH.